BMTBasics.org offers both specific information needed by patient families and looks at BMT access issues from an equity perspective. Patients everywhere share a universal need for information that is reliable, readily available, and easy to understand, on every aspect of the BMT process. But there has long been an information gap about the additional special issues faced by patients from underserved groups. BMTBasics aims to make a significant contribution to helping to equalize the chances for all to benefit from medical advances that now can save lives. However, this is not a medical website, but a guide to help meet the vital daily needs of every BMT patient family: information, organization, and resources. References are provided to other resources on the medical aspects of BMT and treatment of specific diseases.
The information presented in this website is both general and specific. Because it was originally created for patients in need of unrelated BMT donors, much attention is devoted to the topics of matching and the donor search process. The rest of the content covers topics that are relevant to all BMT patient families. Also in keeping with the original mission, information specific to Washington state residents has been retained and updated. Feel free to skip over sections that do not apply to your situation, as well as to refer back as needed to specific topics.
The aim of this section is to cover the range of needs of patient families, while recognizing that each situation is unique, and that not all topics pertain to every patient. Since resource guides can quickly become outdated, reader feedback on its contents, and suggestions s for new listings, are welcomed.
You will note also that much of the information and many of the resources contained on this site relate to BMT as a treatment for cancer and blood diseases. This is because most transplants are done for blood cancers and diseases, like leukemia and lymphoma; non-malignant blood conditions like sickle cell disease and thalassemia; along with blood disorders that can progress to become cancers; and certain solid tumor cancers. In addition, BMT may be used for some rare immune , genetic, and metabolic disorders. As medical science advances, new uses for and methods of BMT are being developed. Since the BMT process and patient and family needs are the same no what a patient’s particular diagnosis, the information here is relevant to all.